Knowing the Journey

Knowing the Journey

The life of parents with differently abled children is a journey filled with unparalleled challenges, profound love, and moments of incredible strength. Raising a child with disabilities demands not just resilience but also an unwavering spirit to confront the unexpected. It's a path that requires constant adaptation and a deep reservoir of patience and understanding. Yet, amidst the trials, parents of special children often find a unique sense of purpose and motivation. 

For parents of special children, every day can feel like an emotional rollercoaster. The daily routine is often punctuated by numerous therapies, medical appointments, and special education plans. Simple tasks that most parents take for granted can become significant challenges. 

  • The Morning Routine: Preparing for the day can be an elaborate process. From catering to the never-ending tantrums to ensuring the right medications are taken to managing specific dietary and nutritional needs and preparing for therapy sessions, the morning is a whirlwind of activity. 

  • School and Social Interactions: Navigating the education system and advocating for their child's needs can be a daunting task. Parents often have to be vigilant to ensure their children receive the appropriate support and accommodations. Social interactions can also be challenging, with parents constantly seeking ways to help their children integrate and feel accepted.

  • Evenings and Nighttime: The end of the day doesn't necessarily mean the end of responsibilities. Many children with disabilities have specific bedtime routines and may require ongoing care throughout the night.

  • Inter and Intrapersonal Relationships: Very often it is observed that parents dealing with such a wide range of unexpected challenges on a day-to-day basis tend to develop strained relationships with their own self and their spouse and family. A major causative factor for this is the question, “Why me?

Despite these challenges, parents also experience moments of pure joy and triumph. A child’s first word, a successful therapy session, or a simple smile can make the toughest days worthwhile. These small victories become monumental, providing a wellspring of motivation.